leadership Mo Ford leadership Mo Ford

‘Nothing about us without us’ – addressing tokenism, conflict and exploitative practice in work with experts by experience

For anyone commissioning or running work with experts by experience.

I recently heard a young adult involved in service design describe what it felt like to be brought into consultation meetings with senior leaders: she called it being asked to ‘put on the show’.

She was referring to the familiar request to share personal stories on demand: talk about the impact of the hardship she had faced, recount private struggles to a room of professionals, or provide emotional resonance for decision-makers.

Involving the people closest to a social issue in designing, delivering, and evaluating services – often described as ‘co-production’ (collaborating as equals with service users) or working with ‘experts by experience’ (people whose authority comes from having lived through the challenge) – is now fairly standard across social services, public bodies, and charities. When done well, it shifts institutional power and leads to services that make a real difference.

And yet, after twenty years in participatory work, I see the same systemic pitfalls recurring. Co-production fails in five predictable ways - here they are, with counter measures you can actually implement.

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Mo Ford Mo Ford

Preventing burnout: Coping Strategies for Witnessing Atrocities

If we’re deeply impacted by what we’re observing in the world and moved to try to be part of the change, we must have opportunities to pause, process and get back out there in any way we can. The same is true whether we’re campaigning against systemic violence, leading a project that poses a risk of vicarious trauma or considering how we engage with and communicate about the information we’re able to access round the clock via social and traditional media. Let’s explore how we might prevent burnout, overwhelm, normalising what may once have shocked us, and feeling frozen with guilt or shame.

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