leadership Mo Ford leadership Mo Ford

‘Nothing about us without us’ – addressing tokenism, conflict and exploitative practice in work with experts by experience

For anyone commissioning or running work with experts by experience.

I recently heard a young adult involved in service design describe what it felt like to be brought into consultation meetings with senior leaders: she called it being asked to ‘put on the show’.

She was referring to the familiar request to share personal stories on demand: talk about the impact of the hardship she had faced, recount private struggles to a room of professionals, or provide emotional resonance for decision-makers.

Involving the people closest to a social issue in designing, delivering, and evaluating services – often described as ‘co-production’ (collaborating as equals with service users) or working with ‘experts by experience’ (people whose authority comes from having lived through the challenge) – is now fairly standard across social services, public bodies, and charities. When done well, it shifts institutional power and leads to services that make a real difference.

And yet, after twenty years in participatory work, I see the same systemic pitfalls recurring. Co-production fails in five predictable ways - here they are, with counter measures you can actually implement.

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Community as an anchor – staying connected to self, others and reality during turbulent times

This weekend, I met a friend for lunch and a stroll through the park. As we shared our news, lamented the price of a coffee in a central London café and promised to meet for wholesome Sunday walks more often, I felt a familiar sense of being re-resourced by taking time to relax, reconnect and enjoy some time out in nature. This was briefly disrupted by unexpectedly passing a far-right rally in the park – suddenly, the two of us seemed significantly outnumbered by people who would likely wish harm on us and many others. We moved on and inevitably spent a long time discussing the state of the world and how we might respond to an increasing sense of division and uncertainty. I reflected on what helps me to keep things in perspective and feel safe when things feel scary and hopeless, and immediately thought of various communities that I’m part of, and the concepts of mutual support and safety in numbers. I also remembered some tools from trauma therapy, like Babette Rothschild’s oases, anchors and safe places, which are helpful in addressing feelings of overwhelm and detachment. Bringing the therapeutic concepts and the idea of community together, I’ve been considering community as a form of anchor, which might serve to keep us grounded and connected.

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Reframing resilience – collective care, ‘staggered breathing’ and permission to be vulnerable

The word ‘resilience’ has become one of the ubiquitous buzzwords that has been favoured in fields from education, to workplace wellbeing, to psychology (in both pop and clinical forms) for quite some time. While I’m in favour of finding ways to pick ourselves back up when we’ve been knocked down – and occasionally even partial to a Kelly Clarkson karaoke moment – I find myself asking questions whenever the concept of resilience comes up. I might wonder whether it’s the most helpful word to use in the given context, and how it’s being understood. For example, I used to offer wellbeing support to a woman who had been through an extraordinary amount of adversity and trauma in her life. When I met her, she still faced some significant challenges, but the way she had turned things around and overcome massive obstacles was remarkable. Any time people heard her story, they would comment on how unusually resilient she was. There’s no denying the truth of that, but she internalised the message that she was ‘a resilient person’, and struggled to reconcile this with her experience on days when she felt overwhelmed and less able to cope.

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leadership Mo Ford leadership Mo Ford

Third sector burnout: How can we build sustainable services and treat helping professionals as people first?

For leaders and managers in charities and public services.

Across the charity and public sectors, many professionals are at their edges, resources are strained, and the divide between leadership and frontline teams is widening. Staff are often asked to stretch caseloads and boundaries to breaking point. Words and phrases like ‘burnout’, ‘dehumanising’, and ‘taken for granted’ dominate conversations with exhausted, disappointed workers.

Charities and not-for-profits being asked to do more with less is not a new phenomenon. But the pressures have intensified, and a crucial aspect of how this plays out is the way that those in the driving seat choose to allocate resources, design workloads, and communicate with their staff. The picture can look bleak, but there are choices to be made and space to be taken: re-imagining how we work together to bring about sustainable, meaningful change for service users and the workforce alike.

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LGBTQIA Pride – Authentic Expression and Being Seen, Heard and Valued All Year Round

As we reach the end of Pride month, I want to reflect on what the concept means to me, the importance of being able to show up authentically, and the need to create spaces where people feel seen, heard and valued to continue all year round. Like many in the LGBTQIA community, I’ve developed a level of cynicism about the corporate pinkwashing that characterises parades and parties that have their origins in civil disobedience and resistance to oppressive laws and discrimination. It’s a complicated picture, because on one hand, I feel extreme discomfort about marching alongside corporations involved in the arms trade, institutions that are being investigated for horrific abuses of power, and more run-of-the-mill big businesses that will drop the concern for their queer and trans colleagues the moment they change their social media banners from rainbow flags back to ‘normal’. But on the other hand, I’m well aware of the need for visibility, for antidotes to shame and stigma, and for spaces where we can show up authentically and unapologetically.

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